General BNMDR project information

Project name

Belgian Neuromuscular Diseases Registry

Project abbreviation

BNMDR

Project code

HDBP0005

Primary organization that oversees implementation of project

• Sciensano

Partner organization participating in project

• Not available

Organization that commissioned this project

• National Institute for Health and Disability Insurance (RIZIV-INAMI)

Organization providing monetary or material support

• National Institute for Health and Disability Insurance (RIZIV-INAMI)

Brief project description

The Belgian Neuromuscular Disease Registry (BNMDR) was created in 2008. It is managed by Sciensano and collects data from 7 neuromuscular reference centers. Its goals are to:

a) enable epidemiological research to evaluate the importance of the diseases and the patient characteristics;

b) provide information to the public health authorities for planning of health care in Belgium;

c) promote health services for patients having a neuromuscular disease; d) improve recruitment for clinical trials.

Regulatory framework of this project

Consult the regulatory framework information published on the fair.healthdata.be pages.