Informations générales sur le projet BNMDR

Nom du projet

Belgian Neuromuscular Diseases Registry

Abréviation du projet

BNMDR

Code du projet

HDBP0005

Organisation principale qui supervise la mise en œuvre du projet

• Sciensano

Partner organization participating in project

• Not available

Organization that commissioned this project

• National Institute for Health and Disability Insurance (RIZIV-INAMI)

Organization providing monetary or material support

• National Institute for Health and Disability Insurance (RIZIV-INAMI)

Brief project description

The Belgian Neuromuscular Disease Registry (BNMDR) was created in 2008. It is managed by Sciensano and collects data from 7 neuromuscular reference centers. Its goals are to:

a) enable epidemiological research to evaluate the importance of the diseases and the patient characteristics;

b) provide information to the public health authorities for planning of health care in Belgium;

c) promote health services for patients having a neuromuscular disease; d) improve recruitment for clinical trials.

Regulatory framework of this project

Consult the regulatory framework information published on the fair.healthdata.be pages.