docs.healthdata.be
General practitioners participating to INTEGO utilize the electronic medical record system provided by CareConnect. Data collection is conducted via CSV extracts from the CareConnect cloud database, transferred to the Sciensano healthdata.be platform. Importantly, data is only exported from the CareConnect cloud for physicians enrolled in INTEGO and for patients who have not expressed objections to data sharing. The communication of personal data by CareConnect to the healthdata.be platform is divided into two separate streams: (1) the patient identifier, and (2) the registry variables.
The patient identification code (NISS), along with a technical registration code generated by CareConnect, is transmitted through the TTP (Trusted Third Party) service of the eHealth platform. In this process, the technical registration code is encrypted by the sender, while the patient identifier remains unencrypted. Consequently, the TTP service of the eHealth platform pseudonymizes only the patient identifier.
The registry variables, accompanied by the same technical registration code used for the patient identifier, are transmitted separately via a direct, encrypted web service to the healthdata.be platform. Upon receipt, the healthdata.be platform decrypts both communications and consolidates the data based on the technical registration code. After successful consolidation and technical quality control, the technical registration code is immediately and permanently deleted from the healthdata.be platform. The healthdata.be platform maintains a log of all technical processes to ensure transparency and security.
Data validation, preservation, and analysis: Using the supplied data, researchers carry out their work, which includes conducting research and preparing reports for public and targeted audiences. Researchers only have access to the data specific to their assigned register (INTEGO).
Through the healthstat.be platform, scientific reports, diagrams, and figures from the INTEGO register are made accessible to the public at an aggregated level. This is achieved via a secure web application.